General Stroke Resources
- Where to start: American Stroke Association | National Stroke Association
- Our parent association: American Heart Association
- Department of Vocational Rehab, for help re-entering the workforce after stroke: DVR
- Stroke information and resources: StrokeNet
- Referral, skill training, counseling, and other disability resources: Alliance of People With Disabilities
- Christian support and medical equipment in Bellevue: Bridge Ministries
- Driver re-licensing information: Re-licensing
- King County FLASH discount card for the disabled: FLASH card
- Brain Injury Alliance of Washington: BIA WA
- Provail, life opportunities for the disabled: Provail
- Paul Berger, young adult stroke survivor with a wealth of practical tips and information: Stroke Survivor
- Stroke Determination Foundation, a survivor’s and caregiver’s network for connections and resources: SDF
- Cerebellum functions and the effects of damage: Cerebellum
- Crisis Clinic Disability Support, phone help for resources and advocacy: 206-461-3210 ext 663
- Air travel after stroke: Air travel
Area Support Groups
Young adult stroke support group in Graham (south of Puyallup): Reclaiming Ourselves
Tacoma Area Stroke Support Group: Eboli Giannini, 206-816-2711, ebolina@hotmail.com
Evergreen Hospital support group in Kirkland: 425-899-3000, www.evergreenhealthcare.org
Overlake Stroke Support Group: Overlake Support Group
Valley Medical Center Stroke Club: Stroke Club News
Current Events
UW study, Brain/Computer Interface Control: UW Brain/Computer
UW study, Aphasia Therapy Research: UW Aphasia Therapy
UW study, Aphasia and Memory: UW Aphasia Memory
UW study, Speech changes: UW Speech Changes
UW study, recent ischemic strokes: UW MRI Study
UW study, game-like arm/hand therapy: UW vHAB Research
UW study, couples with aphasia: UW Aphasia Couples
Brain Injury Alliance Health & Wellness classes: BIA Health and Wellness
Harborview occupational therapy study for arm function: Harborview Study
BIAWA Walk, Run, and Roll Apr 22, 2018: WW&R_2018
Aphasia
Aphasia means loss or difficulty with language and communication
Where to start: National Aphasia Association
UW clinic for speech therapy, director Nancy Alarcon, MS, CCC-SLP: UW Speech and Hearing Clinic
UW Aphasia Research Lab, director Diane L. Kendall, PhD, CCC-SLP: Aphasia Research Lab
“Let the Games Begin” language and conversational support group at Northwest Hospital: Info | SignupSheet
Toastmasters is an excellent way to hone speaking skills: Toastmasters International
More public speaking links and resources: Public Speaking
Links between music and speech: Singing Therapy | Words and Music
WA Relay Service provides free telephone assistance: WA Relay
Seizures
Online support group: My Epilepsy Diary
Epilepsy Foundation: Epilepsy Foundation
Epilepsy Foundation Northwest, monthly meetings: EFNW Flyer
Caregivers
Caregivers group, meets in parallel with YASS and also at UW: UW Caregiver Support Group
UW caregiver resource hub: UW Caregiver Resources
Doctors
These doctors are all recommended by one or more of our members
Dr. Michael Weinstein, physical medicine and rehabilitation
Dr. David Clawson, physical medicine and rehabilitation
Dr. Lauren Schwartz, rehabilitation psychologist and disability counseling
Dr. Curtis Baxstrom, vision treatment and learning therapy
Therapy & Exercise
New and used rehabilitation and therapy equipment in Edmonds: Donor Closet
In-patient and out-patient rehabilitation services: Northwest Hospital Center for Rehabilitation
Treatments for muscle spasticity (dystonia): Dystonia treatments
Volunteers wanted for NeuroGame therapy research: NeuroGame Therapy
Volunteers wanted for RCT therapy research: RCT Therapy
Presentation about music therapy for neurological rehabilitation: Music Therapy
Weekly brain health class from Lisa Steubing: MudPuddle Brain Health
Exercise your brain: Smarter Brains
Chocolate is brain food! Who knew? Chocolate brain food
TangoStride to boost confidence and increase mobility, one step at a time: TangoStride
Eastside writers group with a writer and stroke survivor: WriteClick
Online rehab program from home, from $20/mo: Work Your Motor
Recreation
Outdoor sports for the disabled, including skiing, cycling, boating, etc.: Outdoors For All
Sailing opportunities for the disabled: Footloose Sailing
Sailing cruises for the disabled: Sailing Heritage
Fun online brain games: Lumosity
Wii video game “Big Brain Academy”: Big Brain Academy
Handicapped Travel Club: Handicapped Travel Club
Group presentations
Here are some presentations which have been given to our group:
Post Stroke Depression, Kailey Cox, BSN, RN, SCRN, November 2023
Update on Stroke Rehab Modalities, Dr. Paul Chuwn Lim, October 2023
Communication strategies for aphasics & caregivers (Linda Matsuda): Matsuda, 2-2011
Aphasia communication techniques and technologies (Blaire Wagner, Brittney Skrupke): Wagner, Skrupke 5-2011
Aphasia and tips for living with it (Kaylee Paulsgrove): Paulsgrove, 6-2012
Life’s Simple 7 from heart failure survivor Carolyn Banguero: Banguero, 10-2012
Aphasia: Hope is a Four Letter Word review and discussion, Christine Kauh: Kauh, 11-2012
Resources for the disabled and caregivers from the Crisis Clinic: Simpson, 03-2013
Aphasia Awareness Month presentation from Reva Robinson: Robinson, 06-2013
Kickstart walking system from Cadence Biomedical demo: Kickstart, 09-2013
MudPuddle Fitness presentation from Lisa Steubing: Steubing, 01-2014
Dr. Erica Johnson, sex and intimacy after stroke: Johnson, 04-2014
Rachel Liu “Reaching Your Goals in Everyday Life”: Liu, 06-2014
Jackie Molzhon from Outdoors For All: Molzhon, 05-2015
Negin Kourehpazan from Brain Injury Alliance: BIA, 10-2015
Adam Dalgleish from Uber, the ride service: Uber, 03-2016
Stroke and your emotions: PBA, 04-2016
Stroke, The REALITY, video part 1: Video part 1, 02-2017
Stroke, The REALITY, video part 2: Video part 2, 02-2017
Stroke, The REALITY printed version: Slides, 02-2017
Finding meaning in life, thought-provoking quotes: Quotes, 03-2017
Dr. Esther Rawner, lifestyles for stroke reduction: Rawner, 05-2017
Lauren Sheehan, OT, Smart Glove presentation: Sheehan, 06-2017
Medtronic implanted Baclofen pump: Medtronic, 10-2017
TangoStride presentation & demo: Condrea, 01-2018
Inspiration, Health Tips, Volunteer Opportunities
Jill Bolte Taylor, a neuroscientist who made an amazing and insightful stroke recovery: My Stroke Of Insight
Wellness Guide from the American Heart Association: Wellness Guide
Information and application to become a Stroke Ambassador: AHA Stroke Ambassador