General Stroke Resources
- Where to start: American Stroke Association | National Stroke Association
- Our parent association: American Heart Association
- Department of Vocational Rehab, for help re-entering the workforce after stroke: DVR
- Stroke information and resources: StrokeNet
- Referral, skill training, counseling, and other disability resources: Alliance of People With Disabilities
- Christian support and medical equipment in Bellevue: Bridge Ministries
- Driver re-licensing information: Re-licensing
- Brain Injury NW: Brain NW
- Provail, life opportunities for the disabled: Provail
- Paul Berger, young adult stroke survivor with a wealth of practical tips and information: Stroke Survivor
- Stroke Determination Foundation, a survivor’s and caregiver’s network for connections and resources: SDF
- Cerebellum functions and the effects of damage: Cerebellum
- Crisis Clinic Disability Support, phone help for resources and advocacy: 206-461-3210 ext 663
- Air travel after stroke: Air travel
Find a stroke support group in your area.
Podcasts on Stroke
Beyond Stillness Listen Here — Beyond Stillness – Stories After Stroke
Recovery After Stroke Home – Recovery After Stroke
Aphasia
Aphasia means loss or difficulty with language and communication
Where to start: National Aphasia Association
UW clinic for speech therapy, director Nancy Alarcon, MS, CCC-SLP: UW Speech and Hearing Clinic
UW Aphasia Research Lab, director Diane L. Kendall, PhD, CCC-SLP: Aphasia Research Lab
“Let the Games Begin” language and conversational support group at Northwest Hospital: Info | SignupSheet
Toastmasters is an excellent way to hone speaking skills: Toastmasters International
More public speaking links and resources: Public Speaking
Links between music and speech: Singing Therapy | Words and Music
WA Relay Service provides free telephone assistance: WA Relay
Seizures
Epilepsy Foundation: Epilepsy Foundation
Epilepsy Foundation Northwest, monthly meetings: EFNW Flyer
Caregivers
Beyond Stillness–Caregivers, carepartners, and supporters are invited to gather in a welcoming Zoom environment each month to discuss caregiving challenges and successes. Together, we reflect and share wisdom, purpose, connection, and hope.
We meet the third Wednesday of each month from 3-4pm PST on Zoom.
Therapy & Exercise
New and used rehabilitation and therapy equipment in Edmonds: Donor Closet
In-patient and out-patient rehabilitation services: Northwest Hospital Center for Rehabilitation
Treatments for muscle spasticity (dystonia): Dystonia treatments
Volunteers wanted for NeuroGame therapy research: NeuroGame Therapy
Volunteers wanted for RCT therapy research: RCT Therapy
Presentation about music therapy for neurological rehabilitation: Music Therapy
Weekly brain health class from Lisa Steubing: MudPuddle Brain Health
Exercise your brain: Smarter Brains
Chocolate is brain food! Who knew? Chocolate brain food
TangoStride to boost confidence and increase mobility, one step at a time: TangoStride
Eastside writers group with a writer and stroke survivor: WriteClick
Recreation
Outdoor sports for the disabled, including skiing, cycling, boating, etc.: Outdoors For All
Sailing opportunities for the disabled: Footloose Sailing
Fun online brain games: Lumosity
Handicapped Travel Club: Handicapped Travel Club
Group presentations
Here are some presentations which have been given to our group:
Post Stroke Depression, Kailey Cox, BSN, RN, SCRN, November 2023
Update on Stroke Rehab Modalities, Dr. Paul Chuwn Lim, October 2023
Communication strategies for aphasics & caregivers (Linda Matsuda): Matsuda, 2-2011
Aphasia communication techniques and technologies (Blaire Wagner, Brittney Skrupke): Wagner, Skrupke 5-2011
Aphasia and tips for living with it (Kaylee Paulsgrove): Paulsgrove, 6-2012
Life’s Simple 7 from heart failure survivor Carolyn Banguero: Banguero, 10-2012
Aphasia: Hope is a Four Letter Word review and discussion, Christine Kauh: Kauh, 11-2012
Resources for the disabled and caregivers from the Crisis Clinic: Simpson, 03-2013
Aphasia Awareness Month presentation from Reva Robinson: Robinson, 06-2013
Kickstart walking system from Cadence Biomedical demo: Kickstart, 09-2013
MudPuddle Fitness presentation from Lisa Steubing: Steubing, 01-2014
Dr. Erica Johnson, sex and intimacy after stroke: Johnson, 04-2014
Rachel Liu “Reaching Your Goals in Everyday Life”: Liu, 06-2014
Jackie Molzhon from Outdoors For All: Molzhon, 05-2015
Negin Kourehpazan from Brain Injury Alliance: BIA, 10-2015
Adam Dalgleish from Uber, the ride service: Uber, 03-2016
Stroke and your emotions: PBA, 04-2016
Stroke, The REALITY, video part 1: Video part 1, 02-2017
Stroke, The REALITY, video part 2: Video part 2, 02-2017
Stroke, The REALITY printed version: Slides, 02-2017
Finding meaning in life, thought-provoking quotes: Quotes, 03-2017
Dr. Esther Rawner, lifestyles for stroke reduction: Rawner, 05-2017
Lauren Sheehan, OT, Smart Glove presentation: Sheehan, 06-2017
Medtronic implanted Baclofen pump: Medtronic, 10-2017
TangoStride presentation & demo: Condrea, 01-2018